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The waiting room
Yesterday, the wait to see Dr. Goldberg was long but the sky was clear. From Floor 14: Leukemia I watched planes land and take off at LaGuardia. I also saw a patient on a stretcher who reminded me of the gravity of why we were there. Good news for me right now. My new fibrosis…
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It can be that way forever
So answered Dr. Goldberg, upon Javi asking how long it can be that we don’t understand my health situation. We learned a little more but not a lot. I am diagnosed in general having an MPN with hypereosinophilia. But the diagnosis does not define a type of MPN nor be more specific on the eosinophilia.…
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Pendulum swings upwards
I have good news from my follow-up tests. Yesterday I did a CT scan of me from the chest down to the pelvis. They injected me with contrast fluid which made my body feel warm, pooling the feeling in my nether region most, which was funny to me and apparently routine. The results show my…
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Special for a specialist
We (especially Javi) got up early on Thursday to make the three-subway commute to MSK by my 8:30 report time. When we arrived I realized a Kansas connection to the Koch brothers. The center is unsettling in how nice it is, while, as a chatty lady in the elevator remarked to us, it is not…
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Tolerating ambiguity, hoping for the future
TLDR: My current situation is TBD. On the third day of 2023, I learned I have a mutation on my CALR gene. I told the doctor I didn’t understand what that meant because I never paid much attention to biology. This gene mutation occurred sometime in my 41 years of biological ignorance. CALR mutation is associated…
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