my blood matters

more than you wanted to know

  • It can be that way forever

    So answered Dr. Goldberg, upon Javi asking how long it can be that we don’t understand my health situation. We learned a little more but not a lot. I am diagnosed in general having an MPN with hypereosinophilia. But the diagnosis does not define a type of MPN nor be more specific on the eosinophilia.

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    March 13, 2023
  • Pendulum swings upwards

    I have good news from my follow-up tests. Yesterday I did a CT scan of me from the chest down to the pelvis. They injected me with contrast fluid which made my body feel warm, pooling the feeling in my nether region most, which was funny to me and apparently routine. The results show my

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    February 21, 2023
  • Special for a specialist

    We (especially Javi) got up early on Thursday to make the three-subway commute to MSK by my 8:30 report time. When we arrived I realized a Kansas connection to the Koch brothers. The center is unsettling in how nice it is, while, as a chatty lady in the elevator remarked to us, it is not

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    February 11, 2023
  • Tolerating ambiguity, hoping for the future

    TLDR: My current situation is TBD. On the third day of 2023, I learned I have a mutation on my CALR gene. I told the doctor I didn’t understand what that meant because I never paid much attention to biology. This gene mutation occurred sometime in my 41 years of biological ignorance. CALR mutation is associated

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    February 6, 2023
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